Monthly Archives: July 2013

When the stimming stops. Aka does he have the plague?

“Hi I’m Pip I’m the on-call paedatrician tonight, what’s up with this young man”

“he’s sick”

“I understand he’s autistic what’s telling you he’s not well”

“he’s not stimming and he’s not screaming”

Image

Aka holy hell lady I think this kid is dying!

48 hours and the great autistic one was quite, still, asleep, not screaming, not stimming, not headbutting.

So by now we’re panicking and thus we become intimately familiar with the emergency department at 4am. And to answer your question, no, we don’t get seen quicker because ultimate dadda works there.

Bugger!

So the little dude has tonsillitis, – we think. After donning the bear attack suit Pip the pedatrician managed to lever open the jaws of death long enough to glimpse “big angry red” tonsils.  

So we’re getting antibiotics into him, and pain meds, lots and lots of pain meds, but that’s about it next to no fluids and no food for 4 days so he’s lost what little weight we’d put on him, but that’s ok. And in the mean time he remains a pathetic, whinging, whimpering ball of autistic misery. At some point the bad mumma in me battles her way to the surface and bellows out “oh shut up and harden up”

bad mumma is ignored.

And he continues to act as though his last day on earth was yesterday

And we remain tired, very very tired.


I appear to have pleased the old ones. Yay me

As an atheist and a smartarse it would be hypocritical to say the Gods love me these days so I’ll stick with Lovecraftian mythos and say the old ones like me. 

Cthulhu friend?

Or at least they have no desire to devour me, or maybe they think autism sucks. I know this cause at present I am 1) not dead and B) enjoying some very copacetic moments in life. 

We are at present trying to get control of The Great Autistic Ones need to headbutt everything all the time. And we have finally been able to access the food therapy group so sensory issues is our current flavour of the month.

I give you the following examples. 

It was suggested we try G.A.O. in a waterbed to help his sleeping. Ok great so we start searching of teh interwebs not liking our chances The universe delivers the only single waterbed in the country listed on our auction site just 5 mins up the road from us at the exact time I have a bumper week at work and have an extra $350 in the pay packet. What does the bed cost us? $315. And it has padded bits. yay. Go team Autism!!!

 

Next it’s suggested we try find some light up gadgets to see if they help settle him. Not only do I find an excess of cheap fibre optic lamps, plug in disco balls, huge lava lamps, but when cleaning out mumbleteen funky nest of a bedroom, we discovered he forgot to tell us he returned home 3 months ago from a trip to his Uncles house with little dude all time favorite light and music toy. 

This is the best toy ever, every autistic home should have one.

It even still had working batteries!!

And just today not 3 days after it was suggested we try a white noise machine but the first time I go looking for one I found the only one listed on our auction website.

Thanks Old Ones I don’t know why I have appeased you but I shall continue to do so.

Or maybe it’s that retroactive karma finally kicking in after all these years. I am suspicious and paranoid so I am waiting for that head shot from a flying farm animal or being struck by lighting take down that life likes to offer when we start feeling smug but until then I’ll keep being a cheap arse and pining my hopes on Cthulhu.

Peace  


I ain’t dead……….yet

Been a while, a long while actually. there is a reason and some day soon I may even share it but in the mean time life carries on. Autism is still our faithful friend. The great autistic one is now 8 and 1/2 and still basically the same. We brought our first car some almost 4 months ago and we’ve racked the the mileage or as we don’t say in this country the kilometerage driving here, there and every freakin where.

For reason I choose not to divulge yet we had to take a long trip recently. Now where I live in little bitty ole N.Z. we are a 2 island nation. And by that I mean while yes there are other islands dotted around the place they appear to be inhabited by strange people with not enough teeth and a unhealthy interest in hemp clothing and the native wildlife so “we” like to pretend there are only 2 islands. As we’re such creative folk here we have really stretched the ole noggins and called them the North Island and the…………….wait for it………………….South Island. Pretty impressive huh.

SOOOOOOOOO anyway a couple of months ago we had to travel from North Island(where we live) to South Island(where we used to live). We drove I don’t know why, I guess we’re just sadists like that. Anyway it’s a reasonably decent drive it takes about 12 hours in total and 3 and a half of them are on a boat.

yep a boat. Autism on a boat. It was ………….interesting. Flapping on a boat takes a skill set little dude sorted in fairly rapid fashion

The Cook straight is reported to be one of the rougher ferry crossing in the world. Now I can’t say for certain if that the case and don’t see the need to test the theroy.

The trip was great bouncy in an up and down rough water kinda way. Flapping while spinning while boat is rocking, little dude spun right into the boat wall??? Anyway is was metal there was an impressive boing!! ANd he just shook himself and carried on spinning.

Ultimate dadda and I found our selves saying such gems as “no, no licking the boat” yummmmmmmmmm salty goodness. “no no looking under the doors” we had the good sense to hire a privet cabin for the journey and little dude discovered there were gaps under all the doors. “no,we don’t sniff  him” in the car deck little dude took a fancy to the dock worker that was directing passengers to their cars.

While we were away we stayed with little dudes grandparents that haven’t really seen him in years. They were impressed. And awesome.

The reason we were away wasn’t pleasant but the actual travelling made it better.

One day we might even do it again for the right reasons.

Peace.